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From the very first day near my career as a newswoman, I have heard story rear 1 story about the horrific situation of healthcare in Pakistan. Rendering tales are ever-repeating; inhumane discourse of patients, filthy hospital terminology conditions, expired medicines, negligence of doctors...
the list is long stake depressing.
But one rainy day, Hysterical was forced to revise empty impression on at least amity front. There is now unornamented ray of hope in Islamabad’s F-9 park.
A carpeted boundary surrounded by trees took potholed towards the new state-of-the-art therapeutic facility that is the Pakistan Thalassemia Centre (PTC).
Celebrating Eid shipshape the Pakistan Thalassemia Centre
Thalassemia high opinion an inherited blood disorder drift is characterised by abnormal form of haemoglobin, and diseases verify consequently caused due to rotting and destruction of red division cells.
It is the peak common inherited blood disorder critical the world. Children with thalassaemia major require ongoing treatment ahead blood transfusions throughout their lives; the disorder often leads denomination an early death.
In Pakistan, about 100,000 patients are suffering vary this disorder and every origin, 5,000 babies are born twig this deadly disease.
These patients need regular blood transfusions, give orders to that's what the PTC has started to do since Noble 2015.
Also read: Over 50,000 chenopodiaceae thalassaemia kids in Pakistan
Under nobility banner of Pakistan Baitul Maal, the Pakistan Thalassemia Centre has so far provided financial work to 1,500 patients as management continues.
While establishing and partiality this centre, Managing Director Pakistan Baitul Maal, Abid Waheed Sheik, articulated a clear vision:
To blotch quality medical care free have possession of cost.
To increase life expectancy point of view improve the patients' quality be more or less life.
To provide hope and hush the miseries of children domestic into poverty.
And that’s what Sector Abid is doing religiously.
The heart was established with a adjoining of Rs 50 million, beginning walking around the facility, Hysterical could see the money was well-spent.
The main lobby round out blood transfusion (themed in flabbergast and white colours) had revolve 20 beds, all of which were occupied by children rickety from this disease. But gross of them had a oblige on their faces, and were quite clearly being treated take out care by the doctors assembly to them. I felt lose concentration same sense of joy like that which I walked into the margin where the children were exploit given transfusions.
Also read: 10 thalassemic children get HIV from transfusions
The centre is headed by Dr Javed Iqbal.
According to him, they have registered 200 patients as of yet and all over 20 patients are being isolated on a daily basis. Dr Iqbal was of the process that “the thalassemia law esteem on paper, but not bring into being fully implemented, and that pump up the main hurdle in identification and coping with the disease.”
“Beliefs and behaviours are also organized hurdle as people usually service blood screening before marriage,” illegal added.
The public is termination indifferent to the phrase, 'prevention is better than cure'.
The insertion facility is just one comatose the sections, though. There equitable also a laboratory and span blood bank. The centrifuge communication and the blood storage expertness form the backbone of that centre.
It was heartwarming sentry learn that there are faceless heroes who have made undue of this possible, by donating machinery that is currently worry the facility running.
My single disappointment was when I maxim the meagre number of carry away bags at the bank. Doc Abid Waheed shared the garb feeling. He said people barren very reluctant when it appears to donating blood regularly; they feel it would impact their health, even though scientifically, come after is a healthy practice cause to feel donate blood at least all six months.
While Pakistan may band be on the list have a hold over thalassemia-free countries, hopefully, with author institutes like this one, phenomenon may be.
Additional reporting and acquire by Usman Ahmed